tgokh 41 days ago link
Does anyone know if a website already exists that would help people with such ra
I love to help as well. I an MD student at one of the institutions in the story, and I done a lot of freelance development (design, not so much.) work, primarily in PHP.
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Matt, a quick follow up question: I just found https: which is very close to what I had in mind and had started building. Are you familiar with this site? Are people not able to connect using this site?And many thanks to eigenrick and tgokh for your offer to help. I do know some good designers who would probably do 2016 Air Max On Feet the main + css for no fee.
Have you reached out to NORD (National Organization for Rare Diseases)? They don have a website for connecting patients with rare diseases, but they are a pretty well run organization that help connect people the old fashion way. .
looking into UX, UI and front end work on this, shoot me an email (contact information in my profile).
I work within the fields of digital design and would be very interested in giving a helping hand for a project like this.
and open sourced. I can hack up a UI, but would be best to team with a designer(s). Not sure if Socially Rare has the right ring to it.
eric_bullington 41 days ago link
KDM1A and could be mistaken for brothers. Long story why, but in short I got kids of my own around Bertrand age (also, my own son is named after famous scientist and thinker). I can absolutely guarantee that I be able to maintain it long term, but I can certainly get a forum, site, and member registry database up and going Air Max All White 2014
anteht 41 days ago link
Does anyone know if a website already exists that would help people with such rare genetic condition find each other? Not everyone is able to capitalize on being a popular blogger and it could help those people find help and support. Both kids had de novo mutations in Air Max 2016 White Womens
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